I had to go to a funeral today, and I saw my great-aunt and uncle that I hadn't seen in a long while. My aunt has been following the blog (hey Aunt Mary!) and keeping up with us through family members, and she said she'd been wanting to see me and give me a hug...and then she told me she was proud of me. My first thought was, "what in Heaven's name for? All I've done is survive!" Then I thought about it some more and decided that sometimes surviving is all you can do. Survival doesn't necessarily mean you come out of a traumatic experience unscathed; you're alive, yes, but you've been changed somehow, good or bad, either physically, mentally, or emotionally.
Watching your child struggle to live changes you. It can't NOT change you, if you have any love at all for that child. Her bad days kick your foundation out from under you, break you down, suck your spirit dry until you feel like you can't bear to do it another day. Her good days struggle to fill in the gaping holes left by the bad days, and you feel a little inkling of hope and start to think that things might be normal again, whatever normal might be. You remember what is important, and the details of life that at one time seemed so significant fade into the background. All that matters is your baby, your spouse, making it until the next day. Surviving.
I've read a lot of stories from preemie parents, some with babies born as early as Aubrey, some with babies born closer to full-term, 34, 35 weeks along. Some stayed in the NICU as long as we did or even longer, some stayed only a couple of weeks. Lots of them have said that they are dealing with post traumatic stress disorder (PTSD) because of their child's hospital stay. At first I was incredulous--really? PTSD from a hospital stay? Now I understand how it could happen. Aubrey's NICU journey was 122 days of constant worry and stress, a balancing act of Adam and I working and trying to spend time with each other and with Aubrey, still trying to occasionally do something halfway fun away from the hospital, and trying to keep up with taking care of the house and paying bills and dealing with insurance and...whew. And really, Aubrey had a fairly uncomplicated time of things--no major surgeries or problems (other than her apnea and bradycardia). And at first we scoffed at the parents who said their 2 week NICU stay was horrible and scary--2 weeks? Amateurs, we thought. Try 16, 17, 18 weeks. Try living at the hospital for months, we said. But then we remembered that this was their baby, their flesh and blood, a life they created, that they were worried about for those 2 weeks--any amount of time when you are scared for the life of your child is harrowing, whether it's 2 days or 2 months.
So, we survived. Aubrey is healthy and growing, our marriage is strong. I look back and have no idea how we did it; "by the grace of God" is just about the only answer I come up with. I would say that those dark days feel like a dream, like they didn't really happen to me, except for the fact that if I dwell on a particular memory long enough panic seeps into my bloodstream and races through my veins, making me gasp. Those memories are drilled into my brain, welded onto my heart forever, molten metal that will burn if you linger on it for too long. But guess what? Burns leave a scar, but they heal. And you survive.
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Adam took this...he said, "she may look like me, but I've seen that expression on your face before. Directed at me." It's possible. ;) |
-Keli