We are trying to begin a normal life, well, a new normal life, with some type of routine to it so that things can stabilize for us. I am considering going back to work monday and tuesday night, and since my shift is on nights, i am starting the transition to staying up all night. So I slept in and Keli went to the NICU early before the doctor got there to sit with Aubrey.
Aubrey is wiggling around more now that the medicine is wearing off that she had to take from her minor surgery yesterday. It is good to see her moving around kicking and squirming. This morning the iv going into her umbilical cord had moved to somewhere it shouldn't be so they had to remove it. They were going to remove it when they did the neck surgery anyway, but they still need an iv until then so the nurse was able to get one into her foot. It took several attempts due to her squirming so much, but it's in there. It is firmly taped down but she is still moving the board and gauze around like its nothing. Other than that, she is doing good. Keli got to hold her for about 10 minutes this morning as they weighed her and turned her back around in the condo. They will begin feeding at about 3 this afternoon.
Tomorrow is the neck surgery. I think I am more worried about it than everyone else combined. What they are doing is putting the IV in from her neck all the way down into her chest to pump medications, nutrition and other stuff. This iv will last about 30 days. A surgeon who does this procedure and others like it about 4 times a day will be assembling a team of people and doing the operation tomorrow morning. It has a 99% success rate. The sedation they have to give her for the surgery will wear off after about 12 hours and she will be given a pain killer. During this time, the muscle relaxer will cause her to forget to breathe, so the ventilator will be reattached and she will have to be weened off of it with in 12 or 24 hours. If after 24 hours she still is not breathing correctly, they can inject another medication that will counter the other medicine that will help her. She will have a tube going into her neck and it will be taped and secured, but there are times she will twist and squirm causing the IV to pinch and alarms and party lights to go off. (We call the alarm lights on all her equipment party lights. Some of them are red, some yellow, some green and others orange.) But there is no concern here, just move her head manually and everything will be fine.
Today is day 9. Please join us in reading Psalms chapter 9.
- Adam
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| We were given some playdough and Claudia (keli's mom) sculpted this statue of our family. |
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| The light over her has been turned off so pictures will not be blue anymore. The blanket over the top is to keep it dark inside the condo to replicate the womb. Right above the condo you can see a monitor and the party lights are on top of that monitor. More r seen behind Keli's shoulder and one is green in this picture. More are on the other side of the condo in that blue box, and another one is right beside the badge on the condo. Only the green one is on at this time. |
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| Aubrey as she lays, sleeping off the sedation medicine. |
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| The hospital waiting room has become our new living room as we wait to cycle through visits and post info on the blog. They only allow two visitors at a time to see her so the rest of us sit outside waiting our turn. Feel free to come visit and join us in our new living room. It is located just outside the door to the NICU. We are usually here in the afternoon. |
1936 hours (7:26pm)
We are home from the hospital. We said goodnight to Aubrey and saw her kick and squirm a little. Had a couple of breathing episodes while we were there but she recovered on her own. The Cpap machine is still at 10 sigh breaths a minute, and she is being fed every three hours. Some additives are mixed in her milk to give her more calories. She is holding steady at 1 lb 5 oz.
Tonight pray for her parents as they are worried (for no reason according to the doctors) about the procedure tomorrow. Also pray for Aubrey as she goes through the procedure and that all goes well. Also pray that there is no infection as a result of the procedure.
- Adam
Dear God,
Help me to be brave while I am in this machine to help me grow.
- Aubrey
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