Two tired parents checking in. She squeaked all night. This is due to the surgery the other day. It was expected that she would squeak more and she does.
We laid in bed getting used to her baby noises. Poor Keli didn't hardly sleep because she would hear a higher squeak and she would get up to check her. She slept most of the night but also squeaked and gagged all night.
Nurse came in every three hours to put food in the tube and at midnight gave her eye drops.
Now for some coffee.
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| our lovely accommodations at the hospital |
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| Watching TV with daddy. |
1715 hours. 5:15pm
We are back at the NICU after taking a long nap. She is still really fussy.
The official term for what she has is laryngomalacia. It's what makes her squeak so much. 90% of the time babies outgrow it but sometimes they have to go in and remove some scar tissue or other skin around. No idea now on if she will outgrow it.
Monitors and equipment coming in tomorrow morning. We have to be trained how to set it up.
Tomorrow they will also do some blood tests to see if her blood levels are good. By now she should be able to make her own blood but they want to make sure levels are right. It's just that she is fussing so much. Some babies just fuss, so we are making sure that's what it is and not something else. She is still active so we rule any infection out.
There also maybe some connection between the vent tube being stuck in so many times the other day causing some soreness in her neck and her fussiness. If her throat is sore from it and the reflux comes up, it may burn. Who knows. So many things to wonder about.
The NP said this morning going home Wednesday. But she doesn't make the final say and we haven't spoken to a dr. So it may still be Monday afternoon.
Grandmothers got to hold her all afternoon till we got here. Good deal. Poor girl won't be able to walk until she is 3 because everyone will be holding her.
Adam
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| See how far I can rear my head back when I am mad after eye drops, diaper change and nose treatment? |
So, last night was...stressful. I knew it would be. Of course I was worried about what Aubrey would do and I didn't want to have to call the nurse for everything. I actually think we might sleep better when we do get her home; because the feeding pump she's on now isn't the same one we'll bring home with us, the nurse had to come in every 3 hours and start her feeding. That meant she came in at midnight, 3, 6...it lasted an hour then I had to turn the pump off when it stopped. Once she finally calmed down about midnight, she slept until 7 this morning. Yes, I woke up with just about every noise, squirm, or whimper Aubrey made, but every time I got up to look at her she was asleep. Just a noisy sleeper, I guess. We just have to learn how she is and what works best for her and us, like all new parents. She's been here a long time, but we haven't had an actual whole night with her until last night. I'm still absolutely terrified about bringing her home, but I'll be glad to get into our own routine in our own house.
-Keli
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| Diaper change. Thank you daddy for protecting my privacy. |
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