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Friday, November 30, 2012

Friday, November 30, 2012

7a.m.

Little miss had another good night.  She was back down to room air (21% oxygen, nothing extra) this morning and was doing well.  She did spit up once during the night, but is handling the feedings ok otherwise.  She's now up to a hefty 2lbs 8oz--still counting the IV/board, but that still means that she gained 2 ounces on her own in 24 hours.  Grow, baby, grow!



Dr. Sharpe might possibly have implied yesterday that Aubrey is high maintenance. At first I bristled, but when I thought about it I realized that he's right.  But, she's supposed to be high maintenance right now--she can't do anything on her own yet.  He said that's the norm with preemies her size, and that from what he's seen from years of doing this and thousands of babies usually the ones that are high maintenance as babies turn out to be mellow teenagers.  We can only hope. :)

-Keli



7p.m.

It was a good afternoon.  Aubrey behaved herself for the most part, remembering to do important things like breathe and digest her food. ;)   She dropped her oxygen a few times like normal, always bringing it back up herself before she could get into trouble with me or her nurse.  I held her for a while with my mom there.  She makes the cutest little squeaking and grunting noises when I hold her.  She's starting to fill out so much and look more like what a non-preemie baby would look like. She went up in diaper size today!  the extra-small preemie diapers she had been wearing just got too small, but the regular preemie size she has on now are still too big.  They have to be folded down, but it's a step up!  I'm beginning to think that she might actually have one of those cute little chub rolls on her legs one day...I can dream, right?

-Keli





Thursday, November 29, 2012

Thursday, November 29, 2012

7a.m.

Aubrey had NO episodes last night!  The nurse said her oxygen saturation went down a couple of times, but she brought it back up and her heart rate never went down.  She finished getting blood last night and started her feedings back about midnight (they suspend feedings while getting blood).  She's up to 2lbs 6oz, but that's with the added weight of the new IV (and the arm board it's on), so we don't know a true weight today.  She was looking a little puffy to me last night before we left, and apparently her night nurse agreed; she loosed her CPAP mask a little bit...not enough to let the pressure off, but enough to give her little cheeks a rest.  The added fluid volume from the blood might have something to do with the puffiness too.  Can't wait to see her this afternoon.

That always seems to be the case...no matter when I see Aubrey, when I leave I can't wait to see her again.  It feels like forever between when we leave her at 6 or 6:30 pm and when I get back to the hospital at 2pm the next day.  I'm ok until it gets to be time to leave to go to the hospital...then I'm an antsy, anxious mess until I get into the NICU and lay eyes on her.  When that happens, it's like I release this huge pent up breath and all the anxiety flows out of me with it.  I'm in love. <3

-Keli


6p.m.

Today passed with Aubrey having only 1 true episode.  The phenobarb seems to be helping...or as Dr. Sharpe said, it's a combination of the phenobarb, the new blood, and the good Lord. I got to kangaroo with her for a while, and Adam got a cute video of her picking her head up and raising her eyebrow (I was hoping she'd be able to do that like me and my brother)...then she gives a little mischievous smile.  Now we know that she doesn't really know about something being funny and having a particular reason to smile...but it sure is cute.  On another note, my mom volunteered to decorate the NICU Christmas tree (the staff was arguing over who would have to do it).  It might be the only tree any of us have time to decorate this year.  We're there more than we're at home anyway!



Mom working on the tree


Sweet baby's little smile

Wednesday, November 28, 2012

Wednesday, November 28, 2012

7a.m.

The night nurse said Aubrey had an episode about every 2 hours, "you know, her normal thing."  Yeah, I know.  She's up to 2lbs 3oz.  She got her 2nd dose of phenobarb yesterday...it will take about 4 days to get up to therapeutic level to see if it helps with her episodes.

I took a crossword puzzle book back into the NICU with me yesterday; I think my brain is turning to mush, and I'm trying to stave it off as best I can.  I was just sitting there with Aubrey, sorting of doing a puzzle and sort of watching her.  A couple of nurses ended up around her at once, one just checking on her and one changing out an IV.  The charge nurse came in and asked if everything was ok and what we were all doing, and I told her I was just staring at the baby like usual.  Aubrey's nurse made the comment that she didn't know how I could just stay back there for hours just looking at my child.  Pretty sure she doesn't have a kid.  What I don't understand is why every mama of a baby in the NICU wouldn't want to be back there staring at their child as much as possible.  I know all of them don't have a flexible job like mine, or they live far away...that makes me sad for them.  But I also know some of them could be there and just aren't.  That makes me even sadder, for them and for their baby.  I mean hey, I'm the mom that asked if I could just set up a cot back there next to Aubrey on Christmas Eve and Christmas night since Adam will be working.  They said no.  Imagine that.

-Keli


7p.m.

Aubrey did well today.  She had a couple of episodes, but she was good all afternoon til we left about 6p.m.  Her hematocrit was low, so she had to get some blood; they suspend feedings for 6 hours after blood is given, so she'll get to eat again about midnight.  They upped her feeding amount again, so we'll see how she does with it.  She got her 3rd does of phenobarbitol today...hopefully between that and the fresh blood (that makes her sound like a vampire...) she will feel even better.

She has a new IV in her arm for blood...they have to use a safety pin to keep her arm from flapping around so the IV line won't get crimped.




Tuesday, November 27, 2012

Tuesday, November 27, 2012

The night nurse said Aubrey had some more episodes last night.  Her belly also got a little distended, but she flipped her onto her belly to help get some air out, and she thinks Aubrey filling up her diaper helped take it down a little too.  She weighs 2lbs 1oz.

I'm feeling a little down today, and I can't put my finger on why.  Adam asked me as I was lying awake last night (very unusual for me lately--usually I'm so tired by bed time that I can't stand up) if everything was crashing down on me.  No, everything crashed down on October 20...things have just been piling up on top of the wreckage since then, and today I feel like I'm buried at the bottom of the heap.  I know people say you should never wish time to go by faster, but I'd like to get a pass on that just this once and wish Aubrey a couple of weeks older, a couple of weeks bigger, a couple of weeks more of brain and lung and digestive development.  It kills me to watch her struggle...it gives me actual physical pain to not be able to do something for her, anything to help.  I don't know what to say when people ask me how she's doing...do they really want the 20 minute explanation about how today is different from yesterday and will be different from tomorrow?  I doubt it.  So usually I just say, "as ok as she can be."  *sigh*  We'll get through this day, and then we'll get through another.  One at a time.  Thankfully we have many boxes of kleenex.

-Keli



7p.m.

Feisty Pants is still having her episodes...maybe it's just me hoping, but they seem better than they were before she was put back on the vent last week.  She'll drop her heart rate and oxygen, but her HR will jump back up quickly and her sats will follow.  The nurse had to help her out once today, but she generally got things worked out herself.  They doubled her feeding amount; hopefully she'll tolerate it ok without spit-ups.  Adam and I both got to hold her this afternoon, so that was nice.  







Monday, November 26, 2012

Monday, November 26, 2012

9a.m.

Called to check on little miss Feisty Pants...SHE WEIGHS 2LBS!!!!  She hit the mark when they weighed her last night.  So exciting!  We are totally having a celebration dinner tonight!  In other news, she has had an episode today, but I guess that's to be expected since she's still trying to do the breathing thing on her own.  Could I possibly love this baby any more?  I doubt it. :)

-Keli




Our 2 lb party will be at ruby Tuesday in north Augusta at 6pm. All are invited. Send me or keli a text that you are coming so I can reserve table enough for everyone.


Proud daddy adam.


8p.m.

Dr. Sharpe came to talk to Adam and I today...for about an hour.  Thankfully I was kangarooing with Aubrey the whole time, so I was quite content to let him talk.  He showed us a couple of her latest growth charts:  her head circumference is right on track (a melon head like her mom, perhaps?), but her weight curve is not, well, curvy enough.  She should be staying along the same percentile curve that she's been on, but she's leveling off instead of going up.  Basically, she needs to grow more.

He showed us the results of her last brain sonogram...she had one around the time she was born, and it showed no bleeding in her brain but a "prominent choroid plexus" (the very center of the brain, sort of like the cork in the center of a golf ball).  The one she had last week showed that the choroid plexus had decreased in size...this means that there probably was very slight bleeding around that area at the time the first one was done that made it look bigger then.  The doctor said that this was a level one bleed (the smallest) and would have no impact on Aubrey in the long run (they only worry about level 3 and 4 bleeds).

The results of her EEG were in as well.  That's a test that looks at the electrical activity in the brain.  The doctor that read the scan said that she has "well organized background activity as per age;" this means her brain is basically normal for her age.  He also said that there was "sharp activity more than normal as per age."  This doesn't mean she's having seizures--he was specific that there was no clear evidence of seizure activity.  Dr. Sharpe said that there is abnormal electrical activity in her brain; but, he also said that it's hard to trust the results of EEGs of babies this age because their brains are still developing.  He's putting her on phenobarbitol, an antiseizure medicine, just to see if it will calm her brain down some.  He said that extra "unorganized" brain activity could be contributing to her apnea episodes.  We want her to grow, and the episodes are keeping her from growing like she should. 

 There are 3 causes of her apnea/bradycardia episodes: reflux, positioning, and central.  Reflux is what it sounds like--stuff comes back up her food pipe and gags her, her heartrate goes down, then her breathing goes down.  Positioning is also self explanatory--if her airway isn't open, her oxygen goes down.  Central is coming from her brain--meaning her brain isn't communicating the things it needs to communicate to get the lungs to work like they should.  In that case her breathing slows or stops, then her heartrate goes down.  It all goes back to growth--once she grows and her brain and lungs and digestive system get better at what they're supposed to do, the episodes will decrease.

Whew.  Done with science class for today.  It's all interesting to this biology girl.  Sorry if it's boring for everyone else. :)

Her 2 pound dinner party was a success; we had 13 people at dinner celebrating our baby girl.  Can't wait until she actually gets to be there for the parties.

This is the quilt that Pam made for Aubrey to lay her pretty little head on. It has animals on it.

This is the quilt that is covering her condo now. This side is a collage of shirts from different family members. There is even a piece of Keli's baby blanket.

This side has blocks from family that have written messages and Bible verses for Aubrey. Ephraim, Aubrey's cousin who is 5, wrote in his own handwriting, Aubrey I love you.


The quilt in place.
Getting ready for Christmas, there are snowflakes on her condo, and on the left under the blue screen, a nativity and Christmas place mat.




-Keli




Oh and when she makes it to three pounds we will have a Starbucks party! Keep checking back to watch her progress and prepare to party with us at the next milestone!

Adam

Sunday, November 25, 2012

Sunday, November 25, 2012

We called this morning and they kept the sipap machine on but turned the rate all the way down. She is still 1 lb 14 oz and will probably start feeding again. Dr was making rounds early this morning so we will find out more later. We are at church now and can't wait to see Aubrey in a little while.

Adam


6p.m.

Aubrey had a really good day.  She was still on the cpap with no back up rate and on room air this afternoon.  She had one or two episodes today, but they weren't severe and she brought her stats back up on her own.  She's still wiggling and kickboxing away.  They started her feedings back about 10 this morning...only a tiny amount compared to what she was getting when she went off feedings last, but she has to work her way back up again, this time preferably without the spitting up and the major episodes.  

Aubrey now has a quilt covering her bed that my aunt Pam made for her.  It's made up of squares covered in Bible verses and words of encouragement from her family members.  The back side is made of patches of shirts, pants, ties, whatever, from those same family members.  It's way cool.  She also made her a little quilt to go inside her condo to lay on that matches the big one.  Aubrey's the coolest baby on the block. :)

I guess I've come further emotionally than I thought in the last few weeks.  We had to stop at Walmart tonight on the way home from the hospital for a couple of things.  Like always, there were 4 checkout lines open and approximately 5 million people waiting in each line.  When this happened 3.5 weeks ago, I had a minor meltdown, crying on Adam's shoulder while holding an armful of groceries (get a cart? No way.  We only need three things!) that we were never going to get out of there and that I just wanted to go home.  Embarrassing?  Quite.  Tonight, I made a joke about the never-ending lines and smiled at the checkout lady.  Maybe I'm getting better, or maybe the hormones are just leveling out.  Either way, not making a spectacle of myself in Walmart, of all places, is a good thing.

-Keli

Saturday, November 24, 2012

Saturday, November 24, 2012

2200 hours   (10pm)

It's been a good day. Aubrey is up to 1lb 14 oz and her siPAP is only at 5, down from 15 the other day and on room air. They will begin feedings tomorrow they said just to give her one more night of rest. She only had one episode today.

We will be having a party when she reaches 2 pounds. We were originally hoping for that to happen yesterday, but it will be this week some time. We were given gift cards to Ruby Tuesday so we will be celebrating that little milestone there. Feel free to join us.

Today we didn't spend very much time with Aubrey. Some dear friends came from NY and spent the day with us and we went to see the newest James Bond movie Skyfall. Very good movie. It was good for us to get out of the hospital and fellowship with others. Good for us, but we had to return to Aubrey tonight and say goodnight. Tomorrow we will be with her longer. Maybe we both will get to hold her. Yesterday I got to, and it was wonderful.

Adam

Meditation.

Friday, November 23, 2012

birth story--Adam's version

It was on Thursday we stood in the driveway and decided that Aubrey Claudia would be her name. Then we walked into the house. Later that night Keli had a little cramp-like pain and I went to sleep because I was switching to nights and had to sleep Friday morning.
 
I awoke Friday morning at about 1130 and walked down stairs to do something. Then I walked back upstairs to my room to where my phone was plugged in and saw 5 missed calls from Keli and a text telling me to call her. Uh oh. Did she have another fender bender? Did a bird die? What happened? And of course she didn't answer when I called back. So I called her boss who told me she was having some side pain and went to the Dr a while ago. Oh ok I thought.  Routine stuff. Just being cautious. Finally she calls back and between tears and sobs says something about going to the hospital and dilated. Crap. Ok, one thing at a time. Stabilize Keli, grab hospital bag, tell boss I can't work tonight and then go to the hospital.

So I calm Keli down, but wait! No hospital bag! Argh. I was waiting for another month to do that and now I need it! Nah. Not really. All I need is a charger for my phone because we will be home later.  So I shower and head to University hospital.  Dang gas gauge showing 1/4 tank. Stop and refuel a little. Don't need a lot just a little more in case I get in a hurry. I burn a significant amount of gas getting to the hospital and wait for Keli. She comes in her chariot (ambulance) with no lights on and pulls into the emergency entrance escorted by two EMS people. They are nice and I help them pull the stretcher out and set it down. We wheel Keli in and stop by registration and adjust her info from Doctor’s hospital. They had her as a black female still living in Dearing Georgia. Once that gets straightened out, her parents and I walk to a room labeled labor and delivery. I never caught that clue. We go in and they start hooking up the IV and asking birthing-type questions. The nurse asked her who she wanted in the delivery room when we had a baby. Hm, never thought of that before. Demerol? Too early for those questions. Ask us in few months. We are just here for a checkup sort of thing. Then I heard a nurse use the word high risk. Then phrases like "flat on her back." "Contractions."  All those type words and phrases. They never really sunk in though. When I asked the nurse how long we would be there she said at least a couple of days. Really? I thought. Keli looks fine. Just give her a pill and we will go home. We have had no problems whatsoever. Then another nurse says something about staying there until the due date. Huh what? No way. Oh well she is a nurse and not a Dr so she is just making assumptions. Hurry up and give her the feel-better pill.

After a while reality starts setting in. I was noticing the special bed Keli was in. It had handles on it for gripping, and a whole bunch of other stuff attached to it. A monitor was placed on the baby to hear her heart beat , which was strong and whooshing right along. No problems there. So why are we here?

The neonatology Dr showed up and sat down. He said the word premature. Do what? We are not about to have a premature baby. Not this early. It's way too early. Do they survive? Oh that question was horrible. Don't let that come out. Don't ask that question. The Dr said a few things then asked if we had any questions which we didn't and then left. Ok. Uh this is getting serious. But that was the baby Dr. Not an Ob-gyn doc. So we're good.

Then the Ob-gyn comes in and explains what all is going on.  Labor has started and the goal is to slow down the contractions and stay calm. Ok. But the baby's heart is good. I can hear it. It's steady going on the speaker. It's comforting because I am a little overwhelmed. By the way... did she just say labor? What’s that?

So I brace for a long night and long few months. Keli will be in the hospital and I will be close. How in the world am I going to do this? When I look at Keli, I can see a horrified terror in her eyes. She doesn't know what to do and something seems horribly wrong to her. I am terrified too but I gotta be strong. I can't cry, I can't look horrified or even act scared. Oh it's hard cause it’s my daughter I am worried about. This isn’t some call I am on and it's not someone that I don't know.

Things are slowing down. Thankfully some family have come by and brought dinner and gave me some cash to use in the vending machines if we needed anything. All those things I was going to put in the hospital bag. We talk about letting people know outside of the family so they can start praying. It starts to get dark outside and the texts and phone calls start to come in checking on us. We don't know anything, just pray for us. I begin to think about securing my truck and make sure the dog is fed. Thanks to the neighbors for doing that for us. And family for helping at the hospital.

It's getting late in the evening. Family needs toward to go home and things begin to quiet down a bit more. The contractions are still there, I can see them on the monitors and still hear her little heart chugging along. I think we can hold what we got.

So many things on my mind. Gotta think big picture. Prepare for the worst. Great day... not cool. Those are not good thoughts to think about. Birthing classes where in three weeks. I am so unprepared.

I get Keli calmed down enough to sleep a little. She has so much mag in her, that her speech is slightly slurred and she is lethargic. I wanted to read to her, to put her to sleep, but the only thing I had was my phone. (something else that was going to be in the hospital bag - book) So I read from my phone the book of Genesis. She goes to sleep and I curl up on a couch with blankets keeping me warm. But every little while Keli wakes up and needs attention by the nurse. So I get her and she takes care of things. We are on tip toes cause we don't want her water to break (what does that mean anyways) (baby classes in three weeks) and if it does we might be in more trouble or that might take care of the problem for now. Hmm what does that mean? So it's just me and Keli and I am laying back on the couch trying to sleep and she lets out a little yelp and I know what that meant. Argh. Water just broke. Still didn't know what that was. I kept asking Keli if that’s what it was, and she wouldn’t answer me, wouldn’t describe it. She was so scared that it had broken. So I got the nurse and she tested it and sure enough it was the water.

The ultrasound machine had been left in the room and another respiratory machine had been moved into the small room making it even smaller. The nurse pages the doc that water broke. I ask Keli do you want me to tell the parents yet. No she says. Wait until we know more. So I wait a couple min and then text them anyway. Water broke.

Dr comes in and operates the ultrasound machine. It shows the baby in the channel (what does that mean ) head down and ready to come. Dr ware says "I am sorry we are going to have a baby".  Do what? How do you do that ? What do you mean you are sorry? But I can't ask in front of Keli cause if it’s bad news I don't want her to hear it.

As Keli says, the room turned into overdrive. More nurses come into the already crowded room, towels and gowns are spread around and oops I just spilled some water from Keli's water cup on the floor. Cleaned it up with a towel and I am wondering if I need a gown or wash my hands or do I need a camera or people or anything else? Hmm who did Keli want in the delivery room? Is this room equipped for a delivery? How do you breathe? How do you help? Oh what do I do? Just time enough to send three texts to family that baby is coming.

Thankfully Kim, the nurse, was so wonderful. She coaxed me and Keli and Keli was put into position. Her mom and dad showed up and stood in the corner. I tried to keep her dad out before he walked in but that didn't work. He kissed his daughter and stepped behind the curtain. Kim told Keli to not push yet, they were still getting ready, then told her to push and how to do it.

I was trying to watch baby come out and saw her head sticking out. So small... and Keli would push and more would stick out. I was crying uncontrollably. It wasn't supposed to happen this way. They were tears of joy mixed with absolute agony. My brother's first daughter only lived 4 hours and I didn't want to go through the same thing. I had to be strong for Keli but those dang tears got in the way. Then I was asked if I wanted to cut the cord and was handed a silver pair of scissors. Oh ok. Is it ok that I do that? Where do I do that? I cannot see for the tears. So I wipe my eyes on my sleeve and see where they point and I snip snip. I hear three little cries. Oh my. She is there! I let go of Keli, grab my phone and as they lay her down on the respiratory table I snap her first pic. Then back to Keli. She is ok. She got to see her. Her eyes are dry and she asks for some water which I give her. She is so worried.

We had decided her name but not who was going to announce it. Was I going to or Keli? Was I going to say "hey Aubrey" as she came out or incorporate her name in a sentence like, “Doesn’t Aubrey look beautiful” or something like that. Well I didn't want to take that privilege from Keli if she had wanted to so I waited for her. She was waiting on me but could not hold it in anymore and announced, “Her name is Aubrey.”


Then the nurse asks me to come with her to see where they take little Aubrey. Uh hmm. I want to stay with my wife because I can't leave her side but I want to know where Aubrey goes because I might not see her again for a while. I rush out with Aubrey and Keli’s parents and halfway down the hallway realize that Keli has no family around her. I ask Claudia her mother to go back and me and Darrell her dad continue down the hallway to the NICU. We arrive and there are about 8 nurses gathering around her. I took a pic of the nurses and then I was told I could stand next to Aubrey. I did and said good morning to her. She was so small.

The NICU then told me to leave as they prepared her and one nurse said that her oxygen level was already better in last couple of minutes. I rushed back to Keli and told her the news and prepared her to get into the wheelchair to take her to her next room. She seemed kinda out of it and I had no idea why but I was busy gathering up everyone's stuff in the room. Then I wheeled her down the hall to the NICU and Keli got to see her in her condo as they were working on Aubrey. We went to the room Keli was assigned to and they checked her in and the adrenaline began to subside. We were exhausted. We planned to rest a couple of hours and go back to see Aubrey.

A couple hours later I was awakened to a nursing student putting a blanket over me that had fallen off during my sleep. I sat up, evaluated the threat, then went back to sleep as I realized it was benign.

A couple hours later I awakened and walked with Keli back down to the NICU and met with nursing staff. Reality still had not set in as we were there.

I always heard parents refer to their babies as beautiful. Uh huh. Sure. You are biased. Well, it happened to me. Every time I look at Aubrey I just stare at her because she is beautiful.

Friday, November 23, 2012

Aubrey had a very good night.  The slightly increased rate on the vent seemed to be exactly what she needed in helping decrease the episodes.  They took her feeding tube out since she will be off feeds for a day or two.  The eye doctor was supposed to come check her pretty peepers out this morning, so I guess I'll get the news on that when I get to the hospital in a little while.

I've been reading some articles on a website called preemiebabies101.com that were written by moms who have been through what I'm going through.  Some have helped--my feelings of guilt were validated by other moms whose babies were born way too early...they asked the same questions of themselves that I did.  Others have only terrified me more--preemies who are legally blind, have severe developmental delays, cerebral palsy... the list goes on.  I find that I can't even think about all that yet (don't WANT to think about it, actually).  My overloaded brain can only handle so much information, and my fragile emotions can handle even less.  I'm trying to take each day at a time with Aubrey, but at times it's tough to banish thoughts of the future.  If I start to think about the million "what ifs" that could be in store for her (and for us), I try to shift gears in my head and relive the miracles of what it's like to feel her sleeping on my chest, or see Adam gazing down at her while he holds her.  That's all that matters for the moment.



-Keli




1900 hours (7pm)

Aubrey had a great afternoon. She really did. Keli got to hold her for about 45 minutes and then I got to for about 20. And this time she didn't turn blue like she did the last time. The whole afternoon she had only 3 or 4 tiny episodes that her oxygen when outside of normalcy and her heart rate never went down.

The eye doctor looked at her eyes and said that everything looked good, in that everything was there and attached correctly. Another blood gas test and everything was good. The biggest news is that they took her off the ventilator and back on the siPAP! that's so good. She was breathing really smoothly and only has 15 breaths a minute at room air. So good. They will starting feeding either tonight or tomorrow.
Aubrey's room is painted. Keli picked out some really good colors. It looks very chic.


Happy mommy.

Happy baby.

Family picture.

Alright. I need some assistance. I need a general consensus of opinion from everyone. 

Here's the problem. Aubrey was born Oct 20th on a Saturday. Today is November 23rd (i think) and its Friday. Keli says that she doesn't turn 5 weeks until tomorrow. I say she is already 5 weeks and is actually chugging her way through a solid 5 1/2 weeks now. My basis of opinion (fact) is that it is more than a month from the 20th of last month because it is the 23rd, and we all know that months are 4 weeks long. So if it is past the 20th of this month, it is more than a month, therefore, say it with me, 5 weeks. Keli thinks differently and for once I think I am really right. Her opinion is that since Saturday is her fifth Saturday, she won't be 5 weeks until after tomorrow.

I kinda see her point, but really now. Think with me a minute. Aubrey's birthday isn't on a Saturday, its on a 20th of October. We don't count up 52 weeks from date of birth to determine the next year, (at least I never have) and if we did, we would all have to celebrate 2 birthdays. 1 for birth date, and 1 for the actual. It would be like thanksgiving. Always on a Thursday in November and we never know when it is until we get a new calendar. I firmly believe that Aubrey's birthday is Oct 20, and that it will be celebrated on Oct 20th of every year and not the third Saturday in Oct. Therefore, she is 5 1/2 weeks old.

Feel free to leave comments regarding my correctness.

- Adam


I'm going to strangle my husband. As much as I love him, I might have to lock him outside if he keeps it up with his incorrect counting of, well, everything.  He knows he's wrong about Aubrey, but he just keeps saying he's right to be aggravating.  He doesn't realize that there are more days in a month than there are in 4 weeks.  Sheesh.  He also says that we've been married longer than we have.  He's wrong about that too.  The nurse taking care of Aubrey tonight agreed with me and told Adam he was wrong.  There ya go. :)

-Keli

Thursday, November 22, 2012

Thursday, November 22, 2012

Aubrey had a little bit better day, I guess.  They turned the rate up on the vent, first to 10 then to 15 and that seemed to help lessen the episodes.  She's still on room air, but she looked more comfortable.  The doctor said because her abdomen is a little distended, she spit up a couple of times and she's still having episodes he's going to stop her feedings for a day or two and see if that helps.  He stopped the antibiotics because the screen was unremarkable and because they didn't seem to make a difference in what was going on with her.  Everything is connected, and they just have to figure out what exactly is making the breathing hard for her.

Baby girl had some crazy hair going on.


Today's Thanksgiving thankfulness paragraph is dedicated to my family.  They're pretty much the coolest family ever.  They have taken such good care of Adam and me through all of this.  I think we would have starved to death and not even noticed the week after Aubrey was born if it wasn't for my mother always showing up with food at the right times.  They took care of our house and our dog when we lived at the hospital for the first week.  They have come to visit every (or almost every) day--my mom works her schedule out to be there as much as I need her, my dad comes after work every day, my brother comes on his lunch break, as does my aunt.  My sister in law has brought us yummy meals and come to visit even though she's busy with my precious nephews.  My mom, aunt, grandmother, and SIL all cooked stuff and brought it to the hospital to feed the nurses and doctors (and us) lunch today. We've always been freakishly close, and now is one time when I couldn't be more thankful that we're such freaks.  Maybe that didn't come out right, but they know what I mean. :)

-Keli

Wednesday, November 21, 2012

Wednesday, November 21, 2012

7a.m.

The nurse said Aubrey had a calm night.  They were able to turn the settings down on the ventilator, which is good.  She said she was looking at Aubrey while she was talking to me and there were tiny legs waving around in the air, so she's feeling better.  She lost a few grams, but hopefully that was due to all the stress of yesterday...

So, Aubrey took a little, but unavoidable and ultimately beneficial, step back yesterday.  That means more waiting.  I don't do well with waiting. So God thought He'd be funny...He does that sometimes.  I have an app on my phone that pops up every morning with a Bible verse and passage to read for the day.  This was my verse this morning:  "Wait for the Lord; be strong and take heart and wait for the Lord." Psalm 27:14.  Yes, God, I get it.  I have to just hang out and wait on you to do your thing.  I'm not saying I'm going to be particularly good at it, but I'm going to try.  

Today's thankfulness paragraph is dedicated to the nurses and doctors at the University Hospital Special Care Nursery.  Simply put, they rock.  They are so dedicated to doing what's best for all the babies there.  They say it's their mission, and they are good at it.  The doctors try to explain everything that's has happened, is happening, and is going to happen in language we can understand.  And if we don't understand it, they don't mind if we ask 50 questions.  They have gone down this road thousands of times, and they know what to expect and how to help Aubrey and Adam and I.  The nurses are just as knowledgeable and professional, but they all want to take care of the parents as well.  They're handy with a kleenex when I'm having a crying spell, and they let us do as much as we can with Aubrey as far as changing her diaper, getting vital signs, and holding her.  If my child absolutely has to be in the hospital, she is definitely in the best place possible.

-Keli



10p.m.

Aubrey had a good morning, then a little worse afternoon.  She had a few more episodes and they had to turn the rate on the vent up just a touch to help her remember to breathe (the settings are still pretty low, though).  The nurse told me tonight that thing in her brain that was supposed to switch her to "breathe air now!" mode just hadn't kicked in yet like it would have if she had been born full-term.  She still looks calmer and more peaceful though.  They did an EEG (brain scan) on her this morning to make sure everything is good there, but we probably won't hear results until after the holiday (the doctor said he didn't foresee anything being wrong--he was just being thorough).

I'm exhausted.  More mentally and emotionally than physically (though I could sleep for a week now that you mention it...).  I think starting back on my exercise routine has helped physically. Now if I could just get my emotions in check and my brain to function correctly...

-Keli

Tuesday, November 20, 2012

Tuesday, November 20, 2012

7a.m.

The night shift nurse said Aubrey had several apnic episodes during the night and they had to turn her back up rate on the SiPAP up again.  They keep reminding me that she's just acting like a preemie...I guess I need to keep hearing it because I wonder over and over why she hasn't gotten the hang of this whole breathing thing yet.  Then I remember--she would only be 29 weeks tomorrow.  She's still not supposed to know how to breathe air.  One day, one breath at a time.

Today, my entire paragraph is going to be thankful and not pitiful.  I promise.  I think I promise, anyway.  Here goes: I could not be more thankful for my funny, level-headed, sexy,  unflappable, goofy, hard-working husband.  My friends on Facebook probably get throw-up sick of my mushy posts about him, but he truly is the best guy I know. He's not perfect, thankfully, because neither am I and that would be boring.  But he's perfect for me.  He calms me down when I get my temper up or have a crying fit; all I have to do is look at him and my nerves are eased.  He makes me laugh with his Adam-isms (I have a several-pages long Word file documenting all of his mixed up sayings and new words he has invented) and his different ways of looking at things.  He works hard at a dangerous, aggravating job (that he loves) to provide for us.  He has dried my tears on so many occasions that I've lost count.  He's very good at working with his hands--building things like our deck (and in other ways that I'll keep to myself). :-) He's has been swooned by our daughter (he was trying to say he was "smitten" and it came out "swooned") and I love him even more now that I see how much he loves her.  I am so very thankful that God gave him to me, and I couldn't imagine making this journey with anyone else. 

-Keli




1200 hours  (12 noon)

Keli just called me. Dr called her, said Aubrey is going back onto the ventilator since she has had so many bad episodes this morning and last night. They are going to do another heart echo and more testing. We are enroute to the NICU and will update further.


-Adam




1445 hrs 2:45

The heart echo was fine according to the technician who did the test but that will be confirmed by the actual dr tomorrow. We are still awaiting results of the infection test. Being back on the ventilator is a step backwards, but those are to be expected. Argh.

She looks content right now. The ventilator is doing the breathing for her now so it's easier for her and she looks like she is resting. Her cap is off because the sipap isn't hooked up and we can see most of her face and head. Hair is dark. And her head is bigger than it was albeit cone shaped.

Keli is ok for the most part. It's just tough for us to be on this roller coaster. The nurses are so supportive and understanding.

And now that I've read Keli's posting earlier, well, I am happy to be married to her. She is a treasure that I knew from the day we met on our first date at ihop.

- adam
- daddy extraordinaire


1520 hrs

Respiratory dr said that her settings are low on the machine. Babies need between 60 and 80 breaths per minute and the machine is only supplying 45 per minute with a low pressure. That means she is able to breath otherwise to make up the rest of the breaths that she needs. But having the ventilator on her will help her rest and not have to work so hard to breathe so that if she has an infection she can conserve her strength to fight it off. She might be on the machine for the next week and then they will ween her off. Waiting on the blood gas test results later to make sure that the levels are at the correct levels or can they be turned down more or need to be raised up.

Adam

1630 hrs

Dr Blalock stopped by and said the the blood results and other test were just a little bit off but nothing remarkable. So he is giving her some antibiotics just in case there is an infection. It's best to give them before infection than after its found.

Ventilator has already been turned down to 39 breaths a minute from 45 earlier.

Adam

Monday, November 19, 2012

Monday, November 19, 2012

Adam checked on our sweet pea early this morning since he was already awake. Her air tube came out of her belly sometime during the night (the tape came off of her chin...don't know if it just came off on its own or if she's guilty in this one), but they got it back in.  She's doing well with her feedings--she gained 10 grams but is still at 1lb 13oz.

Since it's Thanksgiving week (holy cow, where did the year go??), I'm going to give thanks for something every day.  Today I'm thankful that Aubrey was as healthy and strong as she was when she was born.  Things could have been so much worse...sometimes 24 weekers don't survive.  Her cry when she was born was the single most beautiful sound I've ever heard.  We didn't have time to prep ourselves on what would be involved in having a premature baby...we didn't have enough time for anything.  Aubrey didn't have enough time in utero, and that still breaks my heart.  Will I ever not feel at least a little guilt about her being born so, so early?  Will I ever stop feeling like I let her down, like I let everyone down--Adam, my parents, Adam's parents?  This is Adam's dad's first grandbaby--I know he's already enamored of her (who wouldn't be?)--but I can't help but feel bad that things didn't go as they should have and that he hasn't been able to hold her and that he won't be able to for a while yet.  I hear the well-meant words already: "but that will make it so much sweeter for everyone when they do finally get to hold her."  Yes, I know, but it doesn't change the fact that she's stuck in her preemie condo for a couple more months. *sigh*  Ok, how did this go from a thankful paragraph to a "pity party, table for one," paragraph?  Sorry about that.  My brain goes in circles these days. I really truly am thankful that Aubrey was born stronger and more feisty than anyone thought possible.  She's our little miracle.

-Keli

Add caption


6:30p.m.

Aubrey did well early this afternoon when I sat with her for a while.  The doctor said she had spit up some icky stuff from her stomach--her stomach is still making its usual amount of acid with no food to balance it out, so she's getting some maalox to help settle her tummy.  Adam and I went back later and he got to hold her for a little bit...until she decided to get way too cozy and comfortable and have a nice episode.  Poor Adam had to give her back to the nurses too soon...he was kinda bummed. She got settled down and we got to touch her and talk to her with her condo open for a little while.  As we were getting ready to leave, Aubrey got mad...we aren't sure why, but she started to turn red and wave her arms and legs and she just cried and cried.  Her heart rate went way up and I couldn't get her calmed down by talking to her, and I couldn't hold her.  So I cried too.  And I turn red when I cry.  So we were definitely a pair. :(  She calmed down eventually, but it was very, very hard to leave her.


Little foot on dad's hand


holding mama's hand





Sunday, November 18, 2012

Sunday, November 18, 2012

Aubrey had a better day today.  She still had a few times where she dropped her sats, but she usually brought them back up without a problem.  Her heart rate dropped once or twice, but that's still to be expected.  The nurse says the second tube going into her stomach to let air out has helped tons--she hasn't spit up again.  She's back up to 1lb 13 oz.  We are SO having a party when she hits 2lbs. ;)

Adam decided to go back to work tonight, so he made the decision to go and see Aubrey earlier in the day then go home and nap.  It's probably better that he not see her right before he goes to work--it's really hard to leave her, and even tougher if she's having trouble.  I got to kangaroo with her for a while today.  I love hearing her make little grunts and sweet baby noises and watching her eyes swivel up towards the sound of my voice while I'm snuggling with her.  I can't wait for the day when the SiPAP mask and all the tubes are off of her and I can see her face and cuddle with her properly.

-Keli

Tough guy dad doing diaper duty



  
This is what happens when I have to take a pic myself...Aubrey's still cute though. :)




Saturday, November 17, 2012

Saturday, November 17, 2012

8a.m.

Dear Aubrey,
You have been with us for 4 whole weeks now. What did we do before you came? How did we spend our time? I can't seem to remember. You upended our safe, small world when you entered it, but now we wouldn't have it any other way. You are fiery and strong, precious and perfect. We love you more than we thought possible, even though things didn't go as planned. We can't wait to get you home.
Love,
Mama and daddy


I made it to the NICU early this morning and spent some quality time with Aubrey, just the two of us.  We got to kangaroo and hang out and chat.  It was super awesome.  She did well overnight--not a single episode! She's still dropping her sats some (oxygen saturation), but she pulls it back up and her heart rate isn't dropping at the same time.  She lost a little weight and is back down to 1lb 12oz.


Today would have been my sweet cousin Christen's 25th birthday...she died almost 9 years ago (that long, really?), and I still miss her all the time.  I wish she could have met Aubrey--she loved little ones.  I know Aubrey would have loved her too.

-Keli


7 p.m.

We headed down to the hospital about 4:00 so Adam could see Aubrey before he went straight to Aiken to work.  I was going to go to Aiken too, to take the monthly goodies I bake to his shift.  When we got to the NICU, little miss had 2 bright orange tubes coming out of her mouth instead of just one.  The nurse said she had spit up again earlier.  Spit up?  How?  The food is going past her stomach and into her intestine!  Well, the doctor thinks that the pressurized air from the SiPAP blowing into her belly was causing her to still spit up a little.  So the second tube was in her stomach but wasn't attached to anything on the outside--it was just to let the air escape from her stomach.  Ok, we get it.  As we watched Aubrey, she had an episode...her heart rate came back up rather quickly, but her oxygen stayed low, like in the 40s, longer than was comfortable, and she turned a little blue again (not as badly as before, but badly enough).

She came around eventually, but as Adam stood there in his uniform he decided that he was not in the right frame of mind to go to work tonight.  He needed to stay with her for longer than the 20 minutes he would get if he left for work from the hospital; he said he just couldn't watch his daughter turn blue and then head off to work like nothing was wrong.  So, it looks like we'll be making a return trip to the NICU in a little while to give Aubrey's dad a little peace of mind.  Aubrey's mom doesn't mind at all.

-Keli


2200 hours (10:00 pm)

Aubrey is doing good. I just spent the last few hours with her and Keli at the NICU. She seemed to kinda calm down a little, only had one small episode that she needed help recovering from, and then two smaller episodes she recovered from. But Keli and I just sat outside her little condo and talked. Her siPAP is at room air and down to 15 breaths a minute down from 23 yesterday. It looks like she has unattached ear lobes and possibly a inny for a belly button. Although today it was kinda poking out. I got to change her diaper too. They are still kinda big for her.

Earlier was rough for me. I was going to work, and stopped in to see her a minute, and she had one of her turning blue episodes. Well, big tough guy here cried. I was all weak kneed and had to lean up against the counter for support. Guess it was about time for me to have an episode. I called my supervisor to give him heads up that I wouldn't make it in, and told him that I just can't watch her turn blue and then come to work. I am very grateful for my supervisors, and my shift as they have been so supportive. Its been a stressful time for us, and I think it caught up to me. So I have the night off, and I am sure I will be back tomorrow.

I am working on painting Aubrey's room and getting it ready for furniture. The other night I put the base coats up and it looks good. Still have to finish the stripes, and Claudia will be painting a tree on one wall with birds.

- Adam







Friday, November 16, 2012

Friday, November 15, 2012

8a.m.

Is it really 4 weeks since this whole thing started?  At this time 4 weeks ago, I thought I was either having round ligament pain, which can happen around 24 weeks, or braxton hicks.  Dilated?  Contractions? Labor?  WHAT?  NO.  Yes, apparently.

Aubrey has come a long way in 4 weeks, but she still has so far to go.  She is still so little, and struggling with getting her breathing right.  She had one true episode last night but also had a few apnic episodes (but her heart rate didn't drop).  She's still eating and has gone up to 1lb 13oz.  We're meeting with the doctor this morning to hear his plan to help with her episodes. 

-Keli


8p.m. 

Well, we talked to the doctor this morning.  I zoomed over from work and Adam woke up to come down (he's back on nights this weekend).  He said they decided to do transpyloric feedings--this means that they moved the feeding tube down into the small intestine to bypass the stomach.  They're hoping this will stop her reflux; the reflux was causing some of the breathing episodes by causing her gag reflex to engage.  When that happens, even in adults, the heart stops for a second.  Also, because she's so under-developed, she has a tough time controlling all the flaps of her esophagus and stomach and the reflux was confusing muscles and causing her to stop breathing for periods of time.  She was better today; she still had some times when her oxygen saturation would drop, but she was able to bring it back up on her own.  The doctor said she'll still have some episodes, just because she's a preemie, but this feeding technique should help decrease the amount of episodes as well as the intensity and length of them.  Here's hoping!

Hello, fan club!


So it's been a week since my last "NICU psychosis" episode.  I'm pretty good about not crying in front of people, but at home it's a free for all.  I sort of lost it last Friday...I think it was the combination of not seeing Adam for a few days and my Nana being sick in the hospital and everything with Aubrey.  I basically dissolved into a heap of soggy Kleenex on the floor in the middle of Aubrey's room.  Adam, who had been asleep on the couch, heard my sobbing and came upstairs to check on me.  I couldn't tell him exactly what was wrong...besides, well, everything.  I wanted her home with us, and I hated how she was struggling, and I was upset with myself for not being stronger for her and for Adam.  I didn't want to put more stress on him by worrying him, but I couldn't keep it all in anymore.  Pretty sure I did manage to worry him that night, but he's so good and so calm that he just held me and rubbed my back and let me cry. What would I do without him? <3





Thursday, November 15, 2012

Thursday, November 15, 2012

10 a.m.

Aubrey had a pretty good night.  She only had one true episode where her heart rate dropped, and she got back on her feedings.  She did spit up a little this morning, but not too badly.  She's gone up to 1lb. 12 oz. :)


What IS this thing on my head? Give me a minute and I can probably get it off...



6:30p.m.

Aubrey and I got to kangaroo this afternoon...she was so good the entire time all snuggled under my shirt while Adam and I talked to her.  We went out to see visitors for a while, and came back to sit with her for about an hour before they closed at 6:30.  About 45 minutes before we were going to leave, she had a doozy of an episode. her oxygen saturation dropped into the high 20s/low 30s (should be around 85%) and her heart rate dropped into the 20s/30s as well (should be 170ish).  what follows is an open letter to our child:

Dear Aubrey,  our sweet little pumpkin,
      Please stop scaring the crap out of your parents.  We are fragile beings, especially right now and especially where you are concerned.  We cannot handle it when your stats drop like they did tonight and you turn a particularly unpleasant shade of blue.  It's not your color.  We don't like it when we can't see you breathing and when the monitor shows that your heart beat is slowing down far too much.  It makes our heart rates speed UP far too much (and makes mama's eyes leak).  So if you could, in the future, please refrain from letting these incidents occur we would be forever grateful.

                                                                             Love,
                                                                             Your freaked out mama and daddy

The doctor is supposed to talk to us tomorrow about his plan to decrease the episodes.  Pray that he has a solution!

-Keli



Wednesday, November 14, 2012

Wednesday, November 14, 2012

1600 hrs.

They have had to up the sipap breaths to 25 and then they just brought them down to 23. And they just gave her some blood; she was low, so maybe that's the reason she is having so many episodes. They can't feed her while giving blood so she hasn't eaten in several hours and will start again later tonight. Keli gets kinda emotional as expected when we walk in and she's having episode after episode. But we are ok. More later....

Adam


9p.m.

Little miss was doing better by the time we left tonight about 6:30p.m.  She was done getting her blood transfusion, thankfully...she has a new IV in her right arm for the blood to go into, and because she kept folding her arm up the IV line would crimp and cause the machine to beep.  So the nurse had to attach a safety pin to the gauze on her arm and pin her arm down to the blanket on her bed.  This made Feisty Pants unhappy.  She wanted to flap that arm around, so instead she flapped her legs and other arm around. I think she was pretty ticked off again about the fact that she wasn't being fed...they wait 3 hours after giving her blood to feed her again, so she should be eating right about now.  Happy baby.  I love her so much that I can hardly stand it.

-Keli

Tuesday, November 13, 2012

Tuesday, November 13, 2012

8 a.m.

The results from her morning sepsis screen haven't come back as of yet, so we're praying that she doesn't have an infection and can get off of the antibiotics.  She had fewer episodes during the night (only a couple), which is much better than yesterday afternoon when she had about 3 in an hour when I was there (way to give mama a stroke, Aubrey).  They turned the back up rate on her SiPAP up and they think that has helped some.  She's just still so little and hasn't figured out everything she has to do yet.  Hopefully things will be calmer this afternoon when I get there to see her.

-Keli


8p.m.

Aubrey had a much better afternoon and evening than yesterday...therefore, so did I. :)  She had another episode or two today, but nothing like yesterday.  Her sepsis scan from this morning came back clear as well, thank the good Lord, but the doctor's going to leave her on antibiotics until tomorrow morning.  He says it's better to stay ahead of any infection and not let it take hold--a preemptive bactericidal  A-bomb.  They restarted her feedings at 3 this afternoon.  Apparently she was super hungry earlier in the day, as my mom saw her pitch a tiny fit trying to get the nurse to feed her.  There was lots of crying and pulling of tubes and wailing fists and turning red.  She was seriously ticked off about the food situation. She's back to eating 9ml every 3 hours. 

Monday, November 12, 2012

Monday, November 12, 2012

7a.m.

The nurse said Aubrey had an ok night...she spit up a couple more times.  That 11ml feeding just might be too much.  We have to wait for the doctor to see her today to see if he'll leave it at that and let her stomach stretch or take it back down a notch.  One milliliter doesn't seem like much, but when you're that little, it makes a big difference.  Also, she had a couple of episodes, but the nurse said she thinks one was caused by the spit-up...her oxygen dropped and when they suctioned her mouth out it came back up.  She's still at 1lb 11oz.

So I got an email today from a pregnancy website I signed up for months ago.  It said, "you are 28 weeks pregnant!"  Yeah, yeah, remind me to unsubscribe from that email.  This is what the next paragraph said:

"At 28 weeks, your baby can recognize your voice! His eyes continue to develop this week, and his brain is developing millions of neurons. The hair on his head continues to grow. Muscle tone in his body steadily develops, and even though his lungs are now capable of breathing air, it would be difficult for him if he were born now." (underlining done by me)

Well guess what, dumb email, my baby was born at 24 weeks and she's been breathing air on her own since the day after she was born.  So there, ha.  Oh, and the email urged me to come up with a birth plan.  Moot point.

For those of you not on Facebook, a friend of mine wrote this on my wall the week Aubrey was born:

"No offense to other people's babies, but I'm pretty sure Aubrey is the most kick @$$ baby around!"

Yes, yes she is.

-Keli



8p.m.

It was a tough afternoon.  Tough for me, at least.  After and hour and a half of being at the hospital but not being able to see Aubrey (a new set of twins was brought into her room, so I couldn't go in), I finally got back there with her.  She continued to have more apnea and low heart rate episodes; sometimes she would pull herself out of it, but other times the nurse would have to jiggle her and get her started again.  She spit up a doozy of a time, getting it all down her front and on her blankets.  Her belly was a little swollen, so they are backing off the feedings for at least tonight.  They did a sepsis screen (checking her blood for infection) and it came back clear, but they started her on antibiotics anyway, just in case something is there but didn't show up yet (they'll do another screen in the morning).  The x-ray of her abdomen showed some air, and the doctor said that he would love to be able to get her off of the SiPAP machine as he was sure that was blowing some air down into her belly; he said that he just couldn't do that yet.

stretched back out after one of her episodes


Her episodes are giving ME episodes.  Every time she had one this afternoon and evening, my heart would break all over again.  Dr. Sharpe (I just LOVE him), stopped me this afternoon, looked me in the eye and said, "how are YOU doing?"  He's seen moms like me so many times that he already knew how I was doing--he could look at me and tell.  He said that this was about the time that what he calls "NICU psychosis" sets in: moms spend so much time at the hospital or thinking about being at the hospital when they aren't there, that they start to go a little bit crazy.  He suggested a night away somewhere, like Charleston, but there's no way I can be that far away.  I think Adam and I might start with going for a walk or to a movie...that's about as far away as either of us can handle.

Slip in a prayer for Adam too, if you don't mind.  He's been so strong and amazing through all of this, keeping me sane and upright, but he's stressed too.  Work stress on top of worrying about his two girls is starting to get to him.  I just love him so much and I hate to see him hurting.

-Keli






Sunday, November 11, 2012

Sunday, November 11, 2012

We went to church this morning for the first time in several weeks.  It was nice to be back with all the people who have been praying for us and supporting us since Aubrey made her appearance. 

3:30 pm

Aubrey had a pretty good night and morning.  She's still at 1lb 11oz, but they upped her feeding amount to 11ml/3 hours.  I think that might be her limit though, because she spit up once during the night and once while we were there watching her, and she hadn't done that before. 

I got to kangaroo with her again!  She's so precious lying on my chest and peeping at Adam and me. She did better today--only one little episode and her oxygen didn't have to be turned up as high as it did yesterday.

Family portrait

Such a good little snuggler

Saturday, November 10, 2012

Saturday November 10, 2012

1450 hours (2:50pm)

Aubrey is 3 weeks old today! She weighs 1lb 11 oz, and is up to 10 ml of food per meal. Her siPAP machine is down to 8 per minute from 12, oxygen level between 23% and 24%. She is acting her age.

Keli will get to hold her today. She is wearing a large shirt so Aubrey can be stuffed in. Can't wait.


- Adam


I got to have my little sweet pea all snuggled up against me today!  I didn't really think about it and asked if I should put gloves on (I'm just used to doing that when I go into her condo to change her diaper or something), and the nurse said, "um, she's going to be on your chest, so I don't think gloves matter too much."  Oh.  Yeah.  Right. :)  So, she got Aubrey all untangled from her cords and slid her under my shirt with her little noggin poking out of the top.  She got so comfortable that she went to sleep and had one of her little episodes where she forgets to breathe.  Oops.  I was so comfortable that I could have taken a nap too, but I didn't want to miss a second of holding her so close and looking at her.

Now that she opens her eyes and peeps around so much, it makes it even harder to leave her.  When I'm telling her goodnight and she's staring at me like she can see exactly who I am and what I'm doing I have the worst time walking away from her condo.  I have to wait until she shuts her eyes and I throw the blanket down and run out.  I hate feeling like I'm abandoning her, even though I know that's not really the case.  I can't wait to have her home.

-Keli

Excuse the skin, but she is just too precious for words.

Hey!  There's a baby in my shirt!

Friday, November 9, 2012

Birth story--Keli's version

I've told the story of the days surrounding Aubrey's birth to several people, so I figured I'd write it out in case anyone else wanted the details. :)



Thursday/Friday

Thursday October the 18th was a normal day.  I was a day over 24 weeks pregnant with our first baby, a girl who we called Ticket.  Since our last name is Stubbs, we thought it fit together pretty well as a nickname until we decided on a "real" name and announced it when she was born.  Adam was off from work that day, and I had taken the day off to be with him since he would be working all weekend.  I had some weird stretching feelings in my belly-region that evening, but nothing that hurt; it was just uncomfortable.  It felt like Ticket had her back against my belly and was pushing against my spine with her feet to stretch.  I woke up during the night with some cramping...it was painful now, but not any worse than a menstrual cramp.  When I was still having them the next morning, I decided to put a call into my doctor just in case.

I went to work on Friday like usual, taking care of the birds at the aviary.  The doctor's office wasn't even open when I called...had to leave a message with the answering service.  A nurse called me back a couple of hours later, but it wasn't my usual nurse; my doctor was out of town.  The doctor that was on call told me to come on in and get checked out since the cramps hadn't stopped.  I was at the office by 11:15 a.m., less than 30 minutes after she called me back.  The doctor's eyes popped as she checked me out, then she called both nurses over to take a look as well.  Now I was freaked out.  She stood up and said, "you're 4 centimeters dilated.  You have to go to the hospital now."

This was not good.  Those "cramps" I had been feeling were contractions and I was in premature labor.  I was 24 weeks pregnant.  Ticket needed to stay put for at least 12 more weeks, in my humble opinion.  I had an appointment the next Monday for my 25 week glucose test.  We were signed up for childbirth/labor/delivery classes in 3 weeks.  This was too early for her, too early for us, too early for everything.  We weren't ready.  More importantly, SHE wasn't ready.

My mom met me at the doctor's office, thanks to a divine appointment--she headed that way before she even knew from me that anything was wrong.  I had been calling Adam for 20 minutes and hadn't gotten him yet--he was supposed to start night shift Friday night and was sleeping during the day.  I finally got him and told him to meet me at the hospital.  Mom arrived and took me to Doctor's Hospital, where I was put flat on my back and hooked up to an IV of magnesium sulfate, which was supposed to stop the labor.  The mag made me feel like my entire body was sunburned and I couldn't cool off.  The room temp went up to about 500 degrees in 30 seconds.  It was unreal.  I was also given a shot of steroids--these were to help the baby's lungs.  The EMTs arrived and I was put in an ambulance and taken to University Hospital--the doctor that checked me had already called the specialist there, and they were waiting for me.  Adam was waiting there for me too--my nerves instantly calmed the second I saw him standing outside the ambulance door.

We were taken to the third floor and put in a labor and delivery room.  Now it was a waiting game--the contractions were getting further apart and not as painful, but they were still painfully obvious to me.  I wanted them gone.  We needed more time, Ticket and I.  She needed my protection for at least 3 more weeks, according to a friend of the family who is a NICU nurse.  Three more weeks would buy us so much--lung development, weight, heart and brain development, you name it.  If we could only get the labor to stop...we'd take 3 weeks, but we really prayed for 3 months.  The hours passed, midnight came and went with more magnesium and more hot flashes, but still the contractions were there.




Saturday

Childbirth is a gory kind of thing, really.  Yes, a beautiful new life appears in the world at the end of the process, but the process itself is not one made of butterflies flying through rainbows and unicorns pooping glitter.  There is blood involved, and mucus and tissues tearing and cutting cords and pain.  I was in physical pain as October 20th began; the contractions were ever-present.  Worse, though, was the mental and emotional pain.  Why was this happening?  What had I done, or not done, to make this happen? My mind wouldn't let me rest very much during those long hours.  I think Adam and I dozed for a few minutes a couple of times, but basically I was terrified all night.

I could feel a contraction begin, and as it got intense I would feel a little gush (gross, I know)...each time I would wonder if it was my water breaking, and each time, my wonderful nurse, Kim, would check.  It still hadn't broken, and I was dozing a little before 3a.m. when one of my IV bags emptied and the little alarm went off.  Kim came in, changed the bag, and right as she was getting done I felt a contraction begin, and then a pop and a big gush.  I knew my water had finally broken this time.  Poor Adam was finally sleeping, and my panicked cry woke him up.  Kim confirmed that was what happened and called the doctor.  Dr. Ware had previously said that sometimes when the water breaks it actually releases the pressure on the cervix and causes it to close back down; she was hoping this would happen with me.  No such luck--she checked on the ultrasound to confirm loss of fluids, then checked me vaginally..."There's a head.  We're having a baby."

Everything in the room went into overdrive.  The doctor getting gloved and gowned, equipment moving in and out, nurses prepping themselves and me, my brain spinning at a thousand miles per hour.  All I could do was stare at Adam in horror while he tried to calm me down.  Ticket and I were not ready for this.  Another contraction came along, and I felt a great need to push...the nurse said "don't push yet!" so I tried not to.  I had no idea when to push or not push, how to breathe, or what to do in general--our childbirth classes were going to be in 3 weeks.  Adam was just as lost as I was, but he kept his cool (on the outside, anyway) and encouraged me through the process.

Adam had sent a text to all of our parents when my water broke.  My mom and dad made it back to the hospital and were in the room (behind the curtain) throughout the delivery.  It only took about 20 minutes and 3 or 4 good pushes, and at 3:57 a.m. Aubrey Claudia Stubbs, formerly known as Ticket, came skidding into the world.  She let out 3 healthy cries, I laid eyes on her for a few seconds, Adam cut the umbilical cord, wiping his streaming eyes the entire time, and she was whisked away by a team of nurses.

I found out after the fact that my memories got a little fuzzy at this point...apparently there was demerol involved.  The doctor needed to give me a few stitches, so she told Adam he could follow Aubrey and see where they were taking her.  He zoomed after her, as did everyone else.  He and mom stopped and looked at each other at the same time, she pointed back to where I was, he nodded, and she came back to stay with me while Adam went with Aubrey. I had to have a couple of stitches, and Dr. Ware did that pretty quickly (and with basically no pain for me afterwards...she's good).  I don't recall everything that happened during this period--I think my brother came in, and Adam's mom was there at some point, and after a while they got me into a wheelchair and Adam pushed me into the NICU to see Aubrey.

She was already in her incubator (preemie condo, as I like to call it--a $55,000 contraption that keeps the temperature and humidity steady and protects her from infection), and painfully tiny...I just stared at her, crying the whole time.  It hurt me to see all those IVs going into her--two through her umbilical cord and one into her hand--but what was really hurting me was the feeling that I had failed her.  It was my responsibility to keep her safe and carry her until February, and I couldn't do that.  No, it doesn't make sense for me to feel that way since it was nothing I did that caused early labor, but the feeling is still there.

We eventually had to leave her and went to our room where Adam and I were able to take a short nap...we were both exhausted.  The day passed with people coming to visit and us making trips back and forth to the NICU.