Wednesday, November 28, 2012

7a.m.

The night nurse said Aubrey had an episode about every 2 hours, "you know, her normal thing."  Yeah, I know.  She's up to 2lbs 3oz.  She got her 2nd dose of phenobarb yesterday...it will take about 4 days to get up to therapeutic level to see if it helps with her episodes.

I took a crossword puzzle book back into the NICU with me yesterday; I think my brain is turning to mush, and I'm trying to stave it off as best I can.  I was just sitting there with Aubrey, sorting of doing a puzzle and sort of watching her.  A couple of nurses ended up around her at once, one just checking on her and one changing out an IV.  The charge nurse came in and asked if everything was ok and what we were all doing, and I told her I was just staring at the baby like usual.  Aubrey's nurse made the comment that she didn't know how I could just stay back there for hours just looking at my child.  Pretty sure she doesn't have a kid.  What I don't understand is why every mama of a baby in the NICU wouldn't want to be back there staring at their child as much as possible.  I know all of them don't have a flexible job like mine, or they live far away...that makes me sad for them.  But I also know some of them could be there and just aren't.  That makes me even sadder, for them and for their baby.  I mean hey, I'm the mom that asked if I could just set up a cot back there next to Aubrey on Christmas Eve and Christmas night since Adam will be working.  They said no.  Imagine that.

-Keli


7p.m.

Aubrey did well today.  She had a couple of episodes, but she was good all afternoon til we left about 6p.m.  Her hematocrit was low, so she had to get some blood; they suspend feedings for 6 hours after blood is given, so she'll get to eat again about midnight.  They upped her feeding amount again, so we'll see how she does with it.  She got her 3rd does of phenobarbitol today...hopefully between that and the fresh blood (that makes her sound like a vampire...) she will feel even better.

She has a new IV in her arm for blood...they have to use a safety pin to keep her arm from flapping around so the IV line won't get crimped.