I made it to the NICU early this morning and spent some quality time with Aubrey, just the two of us. We got to kangaroo and hang out and chat. It was super awesome. She did well overnight--not a single episode! She's still dropping her sats some (oxygen saturation), but she pulls it back up and her heart rate isn't dropping at the same time. She lost a little weight and is back down to 1lb 12oz.
Today would have been my sweet cousin Christen's 25th birthday...she died almost 9 years ago (that long, really?), and I still miss her all the time. I wish she could have met Aubrey--she loved little ones. I know Aubrey would have loved her too.
-Keli
7 p.m.
We headed down to the hospital about 4:00 so Adam could see Aubrey before he went straight to Aiken to work. I was going to go to Aiken too, to take the monthly goodies I bake to his shift. When we got to the NICU, little miss had 2 bright orange tubes coming out of her mouth instead of just one. The nurse said she had spit up again earlier. Spit up? How? The food is going past her stomach and into her intestine! Well, the doctor thinks that the pressurized air from the SiPAP blowing into her belly was causing her to still spit up a little. So the second tube was in her stomach but wasn't attached to anything on the outside--it was just to let the air escape from her stomach. Ok, we get it. As we watched Aubrey, she had an episode...her heart rate came back up rather quickly, but her oxygen stayed low, like in the 40s, longer than was comfortable, and she turned a little blue again (not as badly as before, but badly enough).
She came around eventually, but as Adam stood there in his uniform he decided that he was not in the right frame of mind to go to work tonight. He needed to stay with her for longer than the 20 minutes he would get if he left for work from the hospital; he said he just couldn't watch his daughter turn blue and then head off to work like nothing was wrong. So, it looks like we'll be making a return trip to the NICU in a little while to give Aubrey's dad a little peace of mind. Aubrey's mom doesn't mind at all.
-Keli
2200 hours (10:00 pm)
Aubrey is doing good. I just spent the last few hours with her and Keli at the NICU. She seemed to kinda calm down a little, only had one small episode that she needed help recovering from, and then two smaller episodes she recovered from. But Keli and I just sat outside her little condo and talked. Her siPAP is at room air and down to 15 breaths a minute down from 23 yesterday. It looks like she has unattached ear lobes and possibly a inny for a belly button. Although today it was kinda poking out. I got to change her diaper too. They are still kinda big for her.
Earlier was rough for me. I was going to work, and stopped in to see her a minute, and she had one of her turning blue episodes. Well, big tough guy here cried. I was all weak kneed and had to lean up against the counter for support. Guess it was about time for me to have an episode. I called my supervisor to give him heads up that I wouldn't make it in, and told him that I just can't watch her turn blue and then come to work. I am very grateful for my supervisors, and my shift as they have been so supportive. Its been a stressful time for us, and I think it caught up to me. So I have the night off, and I am sure I will be back tomorrow.
I am working on painting Aubrey's room and getting it ready for furniture. The other night I put the base coats up and it looks good. Still have to finish the stripes, and Claudia will be painting a tree on one wall with birds.
- Adam
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