1600 hrs.
They have had to up the sipap breaths to 25 and then they just brought them down to 23. And they just gave her some blood; she was low, so maybe that's the reason she is having so many episodes. They can't feed her while giving blood so she hasn't eaten in several hours and will start again later tonight. Keli gets kinda emotional as expected when we walk in and she's having episode after episode. But we are ok. More later....
Adam
9p.m.
Little miss was doing better by the time we left tonight about 6:30p.m. She was done getting her blood transfusion, thankfully...she has a new IV in her right arm for the blood to go into, and because she kept folding her arm up the IV line would crimp and cause the machine to beep. So the nurse had to attach a safety pin to the gauze on her arm and pin her arm down to the blanket on her bed. This made Feisty Pants unhappy. She wanted to flap that arm around, so instead she flapped her legs and other arm around. I think she was pretty ticked off again about the fact that she wasn't being fed...they wait 3 hours after giving her blood to feed her again, so she should be eating right about now. Happy baby. I love her so much that I can hardly stand it.
-Keli
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