We went to see our Aubrey this morning before church. She had a really good night with no episodes and only one time of dropping her oxygen below 80% which is great. The reflux medicine is really doing her good. The new cannula is doing good on her and kept the settings the same. She did get kinda warm as Keli was holding her and so we unwrapped her a little to let her cool off. And just like her daddy she had two shirts on. So no wonder she was warm with all those clothes and blankets around her. But she cooled off.
Her weight is up to 4 lbs 8 ounces or 2020 grams.
She has a noise maker beside her playing the sounds of the ocean waves crashing into the beach. She looks so peaceful as if none of this is bothering her. She has adapted so well to her circumstances. We hope she continues to be laid back like her mom and dad.
We hear her every once in a while but no solid temper cries yet. They sound more like "meah" and that's it. We wonder if she is still developing the cry mechanism. Maybe that is another under developed aspect of her. Or she is laid back. We can hear some of the others in the NICU crying that are the same age as Aubrey, but they weren't born as early as she was. Just another question we ponder.
Adam
1500 hours. (3 pm)
As we got to the NICU, her oxygen level dropped and we had to rub her head and shake her a bit to get her to breath. Then we found out earlier that she had dropped her oxygen to 10% and her heart rate to 105. Argh. Then we go to hold her and she drops her levels again. Argh.
Adam
2100 hours. (7pm)
After she settled down a bit from her episode, we let my dad hold her for the first time. Of course he cried like we expected. We broke all sorts of rules around the NICU but it was ok. We are only supposed to have 2 people in there at once and anyone else that shows up has to leave. Well today there were no big wig supervisors around so the nurse told me to put up the screens and 3 of us hid in there so my dad could hold her. It was great. Keli was a nervous wreck because she didn't want Aubrey to quit breathing while the grandpa was holding her so she was continuously watching the monitor and rubbing Aubrey's head when she started to get low before the monitor went off. We took pictures and they are below. Smallest person he had ever held. In a few months everyone will be holding her.
After that excitement, Keli went to pump and what do you know Aubrey's oxygen level dropped about 6 or 7 times for no reason. So I am sitting there, I hear the monitor, I read the level, look at Aubrey and rub her head and turn back to the monitor and hope it goes back up. It does and I relax. And wait for the next one.
They gave her the antacid orally today. The nurse put the syringe (without the needle) into a bottle nipple and squirted it into her mouth. She swollowed it after some help. It needs to be oral because it coats the stomach.
It's been 78 days of this. We are emotionally worn out. Well we were worn out a couple of months ago but it's just rough. Keli had an episode leaving and the nurses crowded around her and encouraged her. Not that there is anything you can say or do to give any relief to the level of agony Keli feels. Full term babies mommies and daddies usually don't have to worry about the baby not breathing. She just suddenly for no reason quits breathing. Within seconds she turns blue. Argh. It's so tough.
Adam.
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