Monday, January 21, 2013

7a.m.

So after having a good day yesterday, Aubrey didn't have such a great night.  She had two big desats where she had to be wiggled and jiggled, and then one bad episode where she had to be bagged.  I'm just at my wit's end here.  What are these episodes doing to her?  Are they causing any permanent damage?  I'd really like to see the doctor today.  Something has to give.

The nurse said she had an absolutely amazing diaper blowout that went up her front, her back, and out the sides.  She said, "sorry about her little sleeper.  It needs washing."  That's ok.  It's what babies do, and I'm glad she's doing something normal.  She weighs 5lb 13oz.

-Keli

7p.m.

 The doctor called me this morning since he wasn't going to be in the NICU this afternoon when we got there.  He said he got in touch with the surgeon at MCG and was told that they couldn't take Aubrey until at least next week.  If they do take her, they'll do dye tests first to check out her reflux and see how bad it is before they decide on surgery.  The surgery would be laparoscopic (minimally invasive--a small hole as opposed to having to cut her open) but would be a little more difficult than normal because her stomach hasn't had food in it and is very small.  The doctor said we know the majority of her episodes are caused by reflux because we see her gag and spit up.  What we don't know is if some of them are still caused simply by her being so premature and her brain not being as developed as it would have been had she gone full term.  We're supposed to meet with the doctor tomorrow--we have lots of questions for him.

She had a good day today--no episodes since last night.  They put her back on the heated high-flow nasal cannula--she was on that before and it adds some pressure to the oxygen going in.  The doctor said he was just trying to think of anything that might help give her a break.  Another diaper blowout equaled another peed on outfit...she likes to keep the nurses on their toes. ;)