We've been in the NICU 13 weeks now. 91 days. I called to check on Aubrey, and she had just had a bad episode. Are these things never going to end?? They are getting really, really old. I just wish I could do something to help her, to make them stop.
-Keli
1420 hours. 2:20 pm
I was in training and Keli sent me a message. It wasn't only the content but how she said it. I went enroute immediately to the NICU.
Aubrey is having too many episodes. Total of 3 today and two of them they had to bag her. Dr is looking into moving her to MCG for surgery to tighten the muscle above the belly keeping the milk in. Don't know a time frame of when it will happen.
Of course mommy and daddy are having rough day too.
Adam.
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| Thinking about something...hopefully it's about how to breathe. |
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| Poor Adam needed a nap. He says he was teaching her how to sleep. |
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| episodes make her sleepy. |
5p.m.
Yeah, so today was not little bit's best day. She had 2 episodes before I got there and then one right when I got there at 11:30a.m. It was just too much. I think this is the first day I've cried in front of one of the doctors. He came to tell me that he was going to talk to the doctors at MCG (the other hospital in the area with a top-notch NICU--it's also a med school so they have tons of specialists like pediatric neurologists and pediatric surgeons) and see what they thought about her. She did ok the rest of the afternoon, but her oxygen was turned up higher than normal. Something has to give in order for us to be able to take her home in the near future--the milk isn't even in her belly yet and she is refluxing like this. Milk came out of her nose twice today. The doctors were trying to give her a chance to grow out of it; maybe by giving her time the muscles keeping the milk down would work on their own as she got bigger and stronger. It seems obvious now, when she would be 37 weeks gestation, that isn't happening. So, now the next step. I just want something to help her.
-Keli
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